Here are some sites I’ve found helpful during my journey. The only organization I’ve worked with is Caring Across Generations. I’ve written a few posts for them when asked.
As for the rest, I have found parts of their sites useful. Honestly, any information I can find that helps me out, I know will help someone else out. A lot of these are geared towards caregivers for the elderly but they still have great information.
The last one is the best, in my opinion, for two reasons; Dana Ritter is great and she’s a SCI spousal caregiver. So she gets it.
The Caregiver Space – An online space to find comfort, relief and to connect with other caregivers who understand what you’re going through. There is a community page with great forums for caregivers of all ages.
Caring Across Generations – Brings together aging Americans, people with disabilities, workers, and their families to protect all Americans’ right to choose the care and support they need to live with dignity. If you want to get involved in the movement, this would be a great group to join.
Caregiver.com – This site has lots of articles, links, tips and resources for caregivers. Again, it’s written with thought of the aging and elderly population and their caregivers but still has great information for SCI caregivers.
Caregiver Action Network – I just found this site and am already in love. It has lots of great information for new caregivers, long-timers like me and may more! CAN (formerly the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.
CareGiving.com – There are blogs, classifieds and community access for caregivers of all types.
Caregivers’ Resources | USA.gov – I have used this site extensively. It was a great help when the quad was newly injured and I was able to get information about his benefits, or benefits we may want to apply for in the future.
Next Step In Care – I have not had time to thoroughly review this site but it does have some good guides and checklists available. On a side note, they also have information available in a few languages… always nice since not everyone speaks English!